iLove

My Mr. Incredible

blog posts about relationships, love,and my marriage and my husband

*MY* Mr Incredible is a great guy:)

Why is he so incredible?

-He puts up with me!
-He can write witty blogs that make you laugh or think, or as ticked as he is about the injustices of the world.
-He keeps the computers in tip top shape
-He caught both of our children when they were born ( no fainting there )
-He loves me more than I deserve.
-He is a great Daddy.
-He is brilliant. ( literally, he’s a genius)
-He can fix anything.
-He can figure anything out.
-He has put up with me for 11 years.( a record for ANYONE) – that makes him a Saint!
-He reads to the kids
-He is a big kid at heart and loves cartoons
-He will watch sappy romantic comedies with me even though he’d rather be watching something like Stargate or Dr. Who
-He likes to go to garage sales and flea markets.
-He is not vain.

-He is very self-controlled

-He’s honest

-He is really good with money.
-Did I already say he is smart? well it deserves mentioning again.
-He listens to my many crazy ideas and lets me implament them, even if it means I’ll fail, and he’s there to hold me even when he wants to say I told ya so.
-He picks at the guitar.
-He is sensible
-He has a great sense of humor
-He has great hair and teeth, important factors in a mate for life :)
-He reads a lot.

-He is very supportive
-He loves music and loves to sing
-He helps the children with problems.( ie, when I am the problem :P )
-He is very protective of our family
-He’s a good sport
-”he watches transformers with me” (our daughter just told me this)
-”he plays Wii with mii”( Daughter added)
-He keeps me focused, even when i’d rather not be and it ticks me off.
-did I mention he is brilliant?
-He rarely complains. and that’s saying something cause he has a LOT of reasons to living with ADD
-He smells good.
-He loves to have family night
-He loves to watch the children play
-He has a twisted sense of humor.
-He is tender.
-He is “manly”.
-Our kids are beautiful…so that means he has good genes :)
-He isn’t too hairy…that probably is too much info, but that’s important :P
-He is the last man I’ll ever be with, because know I could never replace him.
-He is logical…sometimes this drives me nuts but mostly it is quite wonderful.
-He is objective.
-He is my soulmate. He is  a kindred spirit.
-He loves that we homeschool our children as much as I do. he is the brains of the homoeschooling operation, and can answer ANY question the kids come up with ( daddy? do fish pee and poop?”)
-I love him more than I did the day I married him.even when he is mad at me for locking the keys in the car AGAIN.
-He has called me “Cherub” since the day we met..I LOVE that about him!!!
-He calls me Rilliebear, and that makes me feel warm and fuzzy inside

-He has beautiful blue eyes.

All just off the top of my head in no random order.

I’m gonna record this shit someday

blog posts about relationships, love,and my marriage and my husband

and make a podcast called “behind the tweets”

living with my hubby is so fucking hilarious sometimes! he was just singing Elmer Fudd singing Bruce Springsteen “Fire” which is actually a Robin william’s stand up bit.

the man causes me to laugh so hard I cry, and pee my pants, and literally roll on teh floor laughing.

He’s done so from the first day we met. We have a picture of me ROFLING when we were only together a month….. and he’s done so ever since.

Studying Endocrinology….as adreanally

blog posts about relationships, love,and my marriage and my husband

Because i’m going to connect the dots and solve my husband’s pain and health issues.

One need not be a doctor to see connections and correlations between the pain, and when the pain stops.

Mark my words on this day, Feb 20th 2010…. I WILL find an answer.

I may not be able to reverse the permanent damage already done to his body by CFS/ME, but i WILL find a better way to mange his pain, since his doctors don’t give a fuck.

My husband lives with debilitating chronic pain from serious CFS/ME…the kind that people kill themselves over, become drug addicts, or alcoholics over, and he lives with it every second of everyday because his doctor refuses to give him any pain meds stronger than ibuprophen SR, and he is not the addictive personality that allows others to go that route for self medicating.

In 7 years of worsening and ongoing pain, I’m the ONLY one who gives a shit and works constantly to find a management protocol to help him have some level of quality of life.

I’ve been studying on my own for 5 years now. The immune system, the central nervous system, herbology, nutrition, food biology, microbiology, Biochemistry, Vitamins, minerals, Toxins, chemicals, and now the endocrine system.

5 years…i’ve been working on this puzzle. with a ill husband as a guinea pig to test my theories on. I’m getting closer, this puzzle is starting to fill in. The edges are finally connected… i just need fill in the middle and test it as I go.

When my book documenting all this and solution makes my name world known because it helps people like my husband, I’ll make the medical establishment who has allowed my husband to live in pain this badly eat every fucking last page one by one.

I don’t need a diploma hanging on the wall to see the symptom and find a solution.

I don’t need or want fame, or gobs of money, I want my husband not not be laying in bed with tears streaming down his face because he can’t stop the pain, begging me to help him feel better with messages.

I want people to stop suffering because the medical establishment has a god complex and don’t want to solve simple math problems.

I don’t need a diploma to CARE, and therefore to have my caring push my desire for an answer. THAT is the difference between me and them. I CARE. I live with my “patient” everyday and see his pain and suffering every minute of the day. THEY don’t. They see him for 20 minutes once every few months and only see him on a day he has the energy to stand up an GO there.

I will laugh in the face of the doctors who sat by and have not helped my husband have a better life. They don’t REALLY CARE….and they don’t want you to know that if it was “simple” anybody could figure this shit out, and if anybody could figure it out, they would not be as deemed as important or as necessary in society, and they’d not be able to afford the nice cars, homes, and golf club memberships.

And…..If it is because they CAN’T solve simple math problems, and actually DO care… that’s scary…why do we trust them with our lives so much… even when they say they can’t help us?

The medical establishment spends too much time trying to figure out ILLNESS and the CAUSE, rather than looking at HEALTHY. The CAUSE is not as important as the symptoms that presents itself to tell us there is an issue. if through medical research they know HOW to STOP a symptom, trying to figure out WHY people get CFS/ME is futile. They need to be spending their time figuring out WHAT stops, or eases the symptoms by comparing them to a healthy person, and seeking a way to balance them.

Logical…..but too simple for them to even consider….because anyone could do that.

Even a dyslexic, 35 year old  housewife with learning disabilities.



My husband wrote this today about CFS, and a woman who took her own life from it.

blog posts about relationships, love,and my marriage and my husband

Tuesday, 26 January 2010 at 19:24 

Lynn Gilderdale’s moving account of why she decided to end her life

Lynn Gilderdale was afflicted with CFS/ME for 16 years, having suffered through it from the age of 14.

http://lynngilderdale.net/

http://www.telegraph.co.uk/news/newstopics/politics/lawandorder/7074234/Lynn-Gilderdale-how-a-14-year-old-was-condemned-to-a-life-lived-from-a-bed.html

http://www.timesonline.co.uk/tol/news/uk/crime/article6993897.ece?token=null&offset=0&page=1

In 2008, her mother helped her end her suffering. Yesterday, she was set free after a trial that never should have happened.

As a fellow CFS/ME sufferer, I’m glad that I don’t have as severe a case as Lynn Gilderdale. I also know that if I do ever get that bad, I’ll feel the same way and want to end my life. I’m thankful that I am still able to get out now and then… still able to do some of the things to let me feel a little bit of alive, a little bit human… and almost “normal” for a short time.

I’ve had people misunderstand, thinking that being chronically ill I must get the “good drugs” and strong painkillers – that is not the case. The strongest pain medication I have is ketoprofen – little more than glorified Advil – which has the added pleasant side-effect of rotting my digestive system out so I get to live with a different kind of pain. MY medical practitioner, who is less than competent on her BEST day, has some ridiculous delusions about pain, CFS and the whole situation. I mean, you know, you wouldn’t want to give someone in chronic pain something they might get addicted to, because then they might be addicted to it. Never mind that NOT being in pain could actually improve my quality of life… right? I mean, it’s much more important that we worry about what may become a dependence on pain medication. That would be just awful, using pain medication to relieve pain. What a horrible idea.

http://en.wikipedia.org/wiki/Ketoprofen

As long as I don’t push my stamina too much and cause it to diminish more, I shouldn’t end up like Lynn Gilderdale. I really hope I don’t. I can’t imagine never getting out of bed, never going outdoors, never being able to do anything I love or contribute in any way to maintaining our home. It’s bad enough having to be sleeping more than I am awake, and living with pain, brain fog, and all the other peculiar symptoms in my unique little collection.

I don’t like to talk about this much. I don’t want people to feel sorry for me or pity me in any way. It is what it is, I have this illness, and I refuse to let it define who I am. But if it ever gets as bad as it got for poor Lynn, I’ll be looking for a way out, too. You can rely on that.

The Mundane One

What is Love? 11 years later, he’s still here.

blog posts about relationships, love,and my marriage and my husband

It is amazing what 11 years will do for a point of view.

Not being full of myself in anyway, I’m sharing from my heart, because I see a lot of people hurting seemingly searching for “the right one”, or for “more” or are sad about where they are in their life right now.

Love is difficult. but when you bring baggage and neurodiversities to the table..it makes it even harder.

I don’t wanna be that ” look at her all up in her perfect life telling ME how to be happy” because my life is far from perfect. I just chose not to look at it that way. I wanted to share what 11 years has taught me…If you care to know…read on.

If you are reading books on the meaning of life, how to be happy, how to find the person of your dreams and other books promising you the answer, but still can’t seem to find real love no matter how many people you date. Or, you think the relationship you are in sucks because it is too boring, you fight too much, neither of you look as good as you once did and have grown too far apart emotionally, or the kids are too much work, and you sadly wonder if there is more to life than crunchy cheerios in the carpet, and paying the bills, there is a simple answer.

Change your mind. That’s it. Just change how you look at it.

As a kid growing up with ADHD and other neurodiversities, I had a rough time. I wasn’t the pretty girl, or popular, i fact I was considered to be “non datable” and was the fat girl in school. Graduation could not come soon enough. I HATED SCHOOL. I moved away from home at 18 as soon as I graduated from high school hoping to find happiness and maybe find my Wesley to save me, since he wasn’t coming to get me.

I ended up married to a man 13 years older then me. Fast forward a few years and I was 23 & newly divorced from a guy I married for financial security and the wedding party. Yes I readily admit I married to have the party, the gown, the reception, the gifts…I was 20,it’s what all little girls want. I fooled myself and settled early cause I didn’t figure anyone would want ME.

Evidently, we could not have children together, and that was all I really wanted anyway…because babies would love me unconditionally, and I grieved the loss of three pregnancies in those years.

Coming out of that marriage, I was broken, and hurt, and reading those dating books and magazine articles, thinking no one would EVER REALLY love me. So, I decided to stop looking, and work on me.

I’m not sure why it happened the way did for me, because I had a LOT of work on me to do, but when I simply decided to stop looking for validation from someone else for my worth,my soul mate came into my life instantly. It turns out I needed him in my life to do that growing, which I’m still doing today!

So, read the following and decide right now to STOP LOOKING, and love yourself. Because everything else after that, is a bonus.

1)Be yourself. if you don’t like who you are, make the changes needed to love who you are and make no apologies for who you are to anyone. Love yourself enough to be true to yourself and hold out for the right one who will love you for who you are. Not love you for the “dating made up you” you stop being after the wedding, I mean the REAL “this is how I look with the flu” you. Don’t settle…no matter what. Make damn sure you love HIM/HER for real too. Stop searching so hard, and just let it happen, you never know when “the one” is going to show up, and where that might be. When you listen to true love stories of long time married couples, the “how we met” stories vary greatly. You’ll know if he/she is the one…even if everyone around you is telling you otherwise.

2)Realize how wonderful a person he/she really is for loving YOU, and DON’T RUN AWAY IN FEAR. If you do, be brave enough to ask to come back, if it is real love, you’ll get it back.

3)Hang onto him/her forever NO MATTER WHAT, but don’t marry him/her unless you REALLY believe in for better or worse, sickness & health, and REALLY REALLY know what that means.

4)Be comfortable in your own skin, THAT is what makes you sexy, no matter what you wear, or weight

5)Love him completely everyday & he’ll love you back. Even when you are mad, think of a reason you love him.

6)Never go to bed angry, even if it means staying up till dawn working it out. really and truly, this is very important. It doesn’t mater how tired you are the next day.

7)While you are looking for him/her… Don’t care if EVERY MAN/WOMAN falls in love with you. Just care that the RIGHT man/woman stays in love with you when you find them. If you follow these tips, you’ll soon know the difference.

8)If other’s envy you for finding your true love and being happy in ANY circumstance that came your way…be compassionate and tell them how they can have it too. If they can’t hear it right now, it’s just not the right time for them to hear it.

9)Realize real love is not like it is in the movies, so don’t base it on the romantic movies you watch and wish for fairy tales.

10) Like the rest of life, love it is real, and funny and happy and sad, and can hurt, and can make you soar like your flying high. It can hurt like you are being burned by the sun.

Real love endures EVERY moment in life, no matter what that moment brings you. It doesn’t run away when it gets tough. Sometimes it might start to run away, but then it comes back.

Even when you think that you are so close to letting it slip away, or giving up out of fear, anger, frustration, hurt, real love will be there, enduring every moment with you.

If you are in a moment in your life that is hurting deeply right now and this seems impossible to you. Save it anyway, and come back to it now and then. One day you’ll be saying it too.

Real love takes WORK, it is not something that just IS. It might be work, but it is SOOOO worth it… every single moment of it. Yes even the bad moments, because they help define the good and the great moments.

If you asked me how I know, I’ll tell you….11 years ago tonight I found real love, and we’ve been through all those things, and will be again and again, and the one thing I DO know is that when we go to sleep at night ( or at 6 am because we had things to hash out) we go to bed loving each other, and when we wake up in the morning, we greet another day knowing we have each others back, while holding each others hand facing the world together.

If you have don’t have that, you can. It’s not a fairy tale. Like making it to the Olympics. it takes work, and practice. Or, perhaps you already do have that and because it is not packaged up nice like a romantic movie, you don’t recognize it, or you simply forgot in the hecticness of day to day living.

There have been a lot of real moments in the last 11 years…and everyone is important, but the top moments for me have been when he first kissed me, touching his hand to my face like I was the most beautiful woman in the world, when he caught our daughter at her birth, when he caught our son when he was born, and every moment in between when he caught me because I stumbled or fell.

That my friends, is what can’t really be put in a book about “Mars and Venus”, and sell as “how to find the perfect mate” because it is not gimmicky and won’t make the top bestsellers list or Oprah’s book club choice of the month about how to tell if a guy is “not that into you”

Love YOURSELF, and you will be loved back.

Falling Stars

blog posts about relationships, love,and my marriage and my husband

The Mundane One

ARGH!

This meteor couldn’t stay in frame, could it… nooooooo.

By far the best trail, but it trailed off the side. Disappointing.

SuperADDmom:

It’s my Birthday ( the 13th) so after midnight we went out with cameras and kids in tow to a farmers field near home with decent darkness, and view to try and catch some meteors on “film” (memorycard)

this is what TMO caught..a neat pick. too bad the meteor shot out of frame!

still the stars were beautiful to watch. The kids loved them, but they fell alseep.

I got some neat night shots of land and skyscape, but don’t think a single meteor passed by while doing so. I wish I could lay on a blanket looking up at the sky every night, so beautiful!

We’ve been doing this for 11 years now… a tradition we started the year we met.

We have not gone to bed yet, the sun is up, the birds are chirpng and I’m making ham and cheese buns for breakfast, so in a few hours the kids can wake me for what they have in store for me.

This picture is beautiful Babe, thanks for 11 years of catching falling stars for me.  I love that this has become a birthday tradition


The Mundane One

blog posts about relationships, love,and my marriage and my husband

Did you know…my hubby is a photographer

check it out www.carpelumen.ca/potd

Everyday Me

blog posts about relationships, love,and my marriage and my husband

For Sexy Sex Thursday… a change….this is “everyday me”…I post this because for some odd reason, I’m told by some silly wonderful man, that I’m most beautiful when I’m just doing everyday things. I don’t know how I got so lucky. but I’m gonna stop questioning it, and just go with it.

blog posts about relationships, love,and my marriage and my husband

I need to figure out a way to have more me time-very hard with neuro diverse kids & cfs dh
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We are a double disabled Family.

blog posts about relationships, love,and my marriage and my husband

The following was a letter I wrote to a person who decided they could not be involved in our lives because they felt my disabled husband was disrespectful and rude calling me ADDgirl. I decided to share it (with some tweaks) because it hopefully gives a good insight into our world, and because I’m sick of justifying “why I’m married to a “jerk”.

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No, that’s where you are mistaken. I don’t have a problem with you at all. I never have. I just tend to be direct with people I’m upset with and try to clear the air, rather go around complaining to others, or avoiding that person, holding in a grudge. Life’s too short.

You asked about the ADDGirl thing, and was I bothered by that. I told you no, and in fact I appreciated you coming right to me to ask, but you seem to have not taken my response seriously.

ADDGirl is a pet name DH has for me, and one I don’t mind at all…in fact I refer to myself as such a lot. We have learned to laugh at the ADD things I do, and move on… otherwise we’d be miserable all the time.

I’m not a wimpy little wife who is being “verbally abused” by my husband or something…I appreciate your concern, but I don’t need rescuing.

We have a rule that we never call each other out of name, or use derogatory words to express our frustration with things. We don’t go to bed angry with one another, or sleep in separate rooms. HE is also not a person who will not say something if it is bothering him. And that is not just with me.

DH is a VERY dramatic, passionate, COMPASSIONATE caring person, he would help anyone he could within his abilities… the same excited elevate voice he would use when he is frustrated with me, is the same way he tells me a news story when he reads one on the net and someone has had a terrible injustice done to them. He sounds the same way when he tells me someone died that is famous and it upsets him. That’s just who he is.

It is unfortunate that you cannot see him through his grit, and extreme shyness until he gets to know you… I can… I’ve been with him for over 10 years. We have friends who see him through that, and they are very good long time friends who had to overcome what you’re seeing in him right now.

It takes him time to not be so shy around people.But once he’s not shy he’s himself, and the two are very far apart. People often have a hard time adjusting from the silent person, to the boisterous, opinionated, sarcastic witty person he is ( much like Penn Jillette persona from the TV show BullShit, mixed with a Lewis Black delivery)

I’m sorry you have a problem with something in my life…I can’t change that. If it bothers you that much, you are totally entitled to be bothered by it, and make decisions based on that accordingly to suit you and your comfort level. Since you’re choosing to not be involved…before I say good bye, let me say this…

There are some very deep circumstances that NO ONE on the outside looking in would ever be able to comprehend or understand at a glance in our family.

I have very bad ADHD, even with medication, I’m VERY disorganized, scatterbrained…”ditzy” for lack of a better term. I have NO sense of time internally at all, and I also have learning disabilities that cause me to struggle EVERYDAY. Dyslexia, and dyscalcula ( getting numbers backwards) JUST getting through the day takes me so much brain power to double check EVERYTHING, it wears me out mentally, never mind physically.

I also have a “hearing problem”, called audio processing disorder. That causes a LOT of communication issues for me…for one, DH can say things to me, like planning what to take with us somewhere and I don’t hear him, or I don’t hear all of what he said and he needs to repeat himself 3 and 4 times, or I don’t remember which of the discussed choices we decided on, and I will forget to bring stuff with us…or bring the wrong stuff. This is not just a once in a while event. I forget something EVERYTIME we go out, forget how to do stuff all the time, like light the bbq, though I’ve used it a dozen times last summer, etc…and I mess it up.

I am terribly clumsy and break things a LOT, I make mistakes all the time etc… it is VERY frustrating for ME to live like this. But I have lived like this all my life, I’m used to it to a degree, and used to being a total frustration to people.

NOW, YOU Imagine living with someone like ME all the time! I’m very lucky to have such a loving and patient man in my life. He is not my first husband. Living with me is very frustrating for him, and this is not some lame excuse to explain away some “ignorant behaviour” you see as unacceptable by him. It just is what it is. He puts up with a LOT of stuff, that none else ever would.

Sometimes I forget to do laundry for days on end and he runs out of clothes to wear when we want to go out, and then he can’t go out, or I need to wash stuff fast and we end up ruining plans and being late for stuff. I shrink all his clothes somehow, I make his socks pink, I can’t match a pair of socks to save my soul. I over cook, or under cook dinner without serious supervision or standing at the stove closely monitoring dinner, at least 3 nights a week.

NOW….Imagine THAT ( and that’s only a light general explanation), and then on top of that imagine, that you suddenly for no reason got sick almost 8 years ago with an illness they can’t explain and can’t cure, and they just tell you it’s all in your head. You’ve slowly gotten worse to the point of being unable to work anymore, you can no longer financially support your family, a major blow to any man’s self esteem.

As a result, you lose everything you’ve ever acquired and had to get rid of it all, because you were a self employed Computer technician and programmer, and you had no company pension plan to fall back on to keep you comfortable. This meant you had to start all over again at the bottom, because you cannot even get welfare if you have too many assets and they make you sell it all and live off the money until you are practically homeless.

Imagine that while all that stress goes on as you get sick…you got sick, when your daughter was just a little baby less then 6 months old….and now imagine that everything you have ever done with her in her lifetime so far, you were never able to do. You could not carry her on your shoulders, and have her look at you with that ” my daddy is amazing strong” admiration in her eyes.
You were never able to teach her how to play catch, or hockey on the back ice in the yard, or how to skate or ride her bike. Teach her to swim etc… You hurt when she jumps on your lap and simply hugs you. Never mind the idea of rough housing and wrestling on the floor with her. imagine you are in pain ALL the time. like constant muscle spasms and charlie horse cramps kind of pain all the time.

Imagine that you can no longer drive yourself anywhere and need to rely on your wife to take you EVERYWHERE, but that doesn’t really matter because you can hardly have the energy to go anywhere anyway, and she pushes you to get involved back into your old Hobby you loved so much Photography, in order to keep you from being depressed all the time.

imagine you cannot play soccer, or softball, or play hockey anymore, and your goalie equipment sits in the attic rotting away for the last 8 years. You have lost ALL your long time friends because they were all in your life through the activities and sports you used to do, and so, they stopped calling or being involved in your life when you could not come out to play a game anymore.

imagine, you are SO tired ALL the time, you need to sleep 16 hours a day, and the 6 to 8 good hours a day you DO have out of you spend half that time going to the bathroom in pain from irritable bowel. You battle dehydration ALL THE TIME so badly, that you teeter on the edge of needing to go to the hospital for IV fluids at least twice a month.

Imagine that you cannot even put on your own socks and shoes most days because to bend over that much hurts your ribs,and back and legs and if you did, you’d run out of energy before you got to the van to even TRY to go anywhere to give your kids any kind of family fun memories. Imagine the ONLY places you ever went was very often the grocery store to shop, because you needed the shopping cart to hang off of to support yourself to walk.. because being a man with an invisible illness, you’re too embarrassed or proud to use a walker, or a wheelchair.

Imagine now you had to fight with government to PROVE your disability just to be able to get by on a small disability pension we get for ME & him ( we live off of about $2500 a month and SOMEHOW make that work well enough to get by with what we have… BTW HE manages all the money because I cannot, and he is amazing at it) and Imagine feeling all the time, like you need to find a way WITH your illness to make money, because you cannot even afford to send your kids to a $50 program for 8 weeks at the Rec center. You cannot afford for your wife to have a hobby that costs money ( like scrapbooking for example) that would make her happy, you cannot afford to take your kids away on vacations, or to the zoo, or anywhere that actually COSTS an entry fee. you have to take grocery money every year just to be able to afford to by a provincial park pass in the hopes that you can afford the gas to drive there for the kids to enjoy some part of childhood, and you’ll be able to pay to get in.

Would YOU be a ray of sunshine everyday with all of that to deal with? Would you? Really?
Then on top of all of THAT, imagine your daughter turns out to be mildly autistic, or on the spectrum & showing sign of a possible bi polar mood disorder, and though she gets older in years and is almost 9, she seems stuck at the age of 5 or 6 emotionally and your 4 year old son is so hyper, he cannot be contained, and you cannot do any of the physical parenting yourself to help your wife with the kids, and you have to sit and watch her be stressed out and struggle with keeping them busy & happy, because of her issues too.

I’m not telling you this to look for sympathy…the last thing I would EVER want is a sympathy friendship from ANYONE… but I tell you this because, you don’t see the whole picture, and you’re basing your judgements on only what you DO see and that is unfair to my husband…and to me.

Ya, he was crabby when we got together…You didn’t SEE the pain he was in at the Hill taking pictures of his kids sledding, and how uncomfortable he was because I forgot to take his  pain meds bottle for the car with us that day. You didn’t see how long it took him to get dressed to go, and how much pain he was in. You don’t see how scatter brained and nervous I was about going and not forgetting stuff, that it makes me worse and I just end up screwing up worse, and therfore I’m nervous being there worried about what I look like to people I’m only getting to know, and worried that once again MY issues are going to make him look like a crab ass.

When he is standing there taking pictures because that it ALL he can possibly do, of course he would be annoyed that in my anxiety I forgot the chair for him, and he would not say he wanted it or needed it, becasue he is a proud man…and all of THAT wears him out for two days physically. You don’t see how much that day I’ve already bumbelled about messing stuff up, how many temper tantrums our daughter had over being OCD about stupid cupcake wrappers, and had to endure before we got there, you don’t see how I had to chase DS around the house to get him dressed to go, because he is so hyper, and more so because it was his birthday.

I was aware he looked like an ass that day, and it bothered me, and it made ME worse scatterbrain wise cause I was nervous, which made him more frustrated, becasue I was messing up. He wants to jump in and fix it…cause it is just easier to, but I feel guilty that he has to yet again, and try to stop him, and that’s what you get.

He doesn’t have the energy to care what other people think of him, but it bothers me greatly that my issues make HIM look like an asshole. It upsets me, that I can’t be the wife and mother that others can so easily be, to take the pressure off of him. I cannot hold down a job because I get too stressed out and end up messed up bad, and can’t keep a house hold running AND a job. I work REALLY hard to do what I do now. The last time I tried to hold down a Job AND raising a family I had a nervous break down, and wore my housecoat for 4 months because deciding what to wear was too stressfull a decision.

Ya, we argued about it on the way home, because I didn’t want him to look bad to you guys, and I said he should have not said anything, becasue thought I get it, others don’t and take it the wrong way, and I was upset and woried that you guys were uncomfortable.

I felt like a failure for days internally because I was worried about what you guys thought of him. He held me in his arms in bed when I cried for being so screwed up that I can’t even pull off heated chocolate milk for my 4 year old son’s tabogan birthday party. He told me it didn’t matter and DS was happy, and that was all that mattered, and we’d just tried to move on. But you don’t see when the “big jerky mean asshole” is my soft place to fall, or picks up the pieces when we mess up. How could you.

I don’t even recall what he may have said that you were sensative to because it is not that bothersome to me…it is our dynamic, and it only bothers me a lot when I am worried about how other people are going to perceive it, because I know it will be taken out of context, and or make THEM uncomfortable.

We deal with a LOT on a daily basis with everybody’s issues in this house. Ya, we have disagreements, and a lot of frustration on both of our parts, as well as regular couple stuff. Him for my stuff, and me for him not being able to help me anymore with the physical raising of the kids, or the household stuff he once could help with, and the other stuff like change the oil, change the tires, cut the grass, do the garbage etc, help with the kids, whatever.

He may get pissy with me cause I burned a WHOLE LOAF of bread trying to make grilled cheese sandwiches for lunch, and raise his voice at me and ask me why I did that, how could I forget after he has showed me SO MANY TIMES…and I may feel like crap for not being able to remember it… but we get over it quick…and 10/20 minutes later he comes and hugs me and says he’s sorry for being frustrated, and we talk about how to try and fix it so it doesn’t happen again… and we try to move on. We are a team, and we make it work.

We are in this for better or worse, SICKNESS and health.. we just got a LOT less years of health out of the deal, but noone ever said life was fair.

The stuff you don’t see is that, every morning he wakes me up with a kiss on the back of the neck and a reminder to take my medication. Every morning he has a smile on his face because he is happy to be there next to me. Every day between those frustrating times, we laugh, and talk and share, and try to enjoy the most of every good moment we have, because we have to in order to get through the hard times. Like when he is in so much pain at night he can’t sleep and I have to rub his legs and back down, and it is agony to him. We can’t let this stuff win over us…we have two kids who we love and deserve to have a good life.

Every day we have two kids that snuggle on our bed with us, and tell us they love us and we try to do something fun with them. Everyday, we let them see us hug and discuss the issues, and say sorry if we got frustrated and raised our voices at each other or them, we let them know, we are only human, we make mistakes, and we are sorry, and we all still love each other.. we always ask “how can I make it better”, and try to…and every night when we go to bed, we are together and have made it through another day with our love still intact, and talk about the funny, silly, happy things that made our day good. We refuse to let our health issues win over our love…and that is all that matters.

I’m sorry you can’t see that, I’m sorry he upsets you enough that you feel the need to disassociate yourself from us. I’m sorry you feel bad for me, but don’t spend time worrying about it. We are fine…and in the end, as long as *I* know that, and my husband knows that.. I guess that is all that really matters. Even if I’d rather no one ever thought ill of him because I love him so much, and want people to see him how I do. Even if it means having few family and friends who even interact with us.

Be thankful for your health, and stability in work, and what you can provide for your family. Be thankful for your ability to do stuff with your kids. Show your wife you love her everyday, no matter what. Let the little things go..what others think of your relationship don’t matter…the day to day silly stupid things… they don’t matter…dishes, and burnt or late suppers, messy toys on the floor, and that kind of stuff is frustrating, sure but in the end it means nothing when you are on your death bed. What will matter is that you are remembered for the fun times, and the good memories that your wife puts in those scrapbooks, and the smiles you created with the kids, and that you died a happy man, with a wife by your side who loved you through it all, and children who adored you.

Don’t need to go through what we go through, to learn that.

Goodbye.

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